Have Any Of You Had A Temporal Lobe Resection For Your Seizures?
I have uncontrolled seizures and they went to see about the surgery or another kind of medication, but the medication have not been working.
@A MyEpilepsyTeam Member
I’ve always been one who has 1 or 2 seizures per month. Ever since I got the RNS I have more 1 seizure months. If you have more seizures I believe you’d see a bigger… read more
Has Anyone Had Or Has Their Child Had A Frontal Lobe Resection Surgery? If So, How Did It Work Out?
I too did the Left Temporal Lobe surgery. No experience with Frontal Lobe surgery. It helped reduce my seizure frequency from severe to mild and moderate seizures.
Has Anyone Had The Temporal Lobe Resection If So How Was The Surgery For You And Would You Reccot
I want to know if the Temporal Lobe Resection would be something that I could be considering than the VNS, if so I just want advice from patients who have had it and let me know there experience.
I had the temporal lobe removal in 1995 first which was a successful surgery. That took place at Univ of Maryland at the time because no medication was working for me and the seizure activity was… read more
Temporal Lobe Resection
I have epilepsy in both temporal lobes is there answer to a type of surgery for this condition?
I have medial temporal sclerosis on the right and something on the left temporal lobe and had a temporal resection and a neuropace (DBS) implant on the right. just like my VNS the doctor said it… read more
If I Watch My Triggers, I Do Not Have Seizures
Mine were called Absence, now Partial Awareness. Where I live there is no Liability Insurance, so they call 911. I would not trust anyone to administer anything. I now wear a Lifeline button. I had a fall because I had not eaten due to a tooth being pulled, and was in the ER.
Mark, thank you.
Electrode Implantation Eeg.
My doctor and team have decided the best next step for me would to have a intracranial grid electrode implantation eeg. Has anyone had the same procedure done? I have yet to decide on when I want to do this since I am pretty nervous. any advice would be appreciated
@A MyEpilepsyTeam Member, thank you for taking the time to explain. I have had a few 48-hour video EEGs, with no activity. I hope that this one works or it's on to step two
I'm sure that you must be… read more
Epilepsy Surgery?
Has anyone ever had left temporal lobe resective surgery? Has it been positive or negative? Do you have side effects? Would you recommend it? A new neurologist at Mayo Clinic has told me that’s my best, obvious option (I’m drug resistant, and my VNS has become less and less effective over its 6 years with me!).
Give me your thoughts, please… brain surgery is SCARY.
In Sept . Of 98” , I had a brain surgery, on my left temporal lobe of my brain. It didn’t make me seizure free , but it did help reduce my seizure frequency down, from severe to mild and moderate… read more
Temporal Lobe Resection
How does seizure surgery work?
Gutted to read this I suffer temporal lobe but it's too deep in the brain to be operated 😥 so had to settle for VNS x
Anyone Else With Temporal Lobe Epilepsy Ever Find Out They Went On A Rage After A Seizure?
Temporal Lobe Epilepsy
After an all-night focal impaired awareness seizure, (my first diagnosis, obtained by EEG), I woke up in the hospital. I worked in that very hospital in Respiratory Therapy back in the 80's, so I'm… read more
Temporal Epilepsy
Types of treatments for complex partial seizures, evidence of temporal lobe epilepsy?
That’s great!! I believe that’s what my neurologist is going to put me on