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I feel as if I have been lied to by medical professionals. I have always asked the pharmacists and doctors about any new side effects for the prescribed medications I take and have always been told there aren't any. I went to my primary doctor last week on Friday and got told that the seizure medications cause a person's blood sugar to rise. My primary doctor told me this and find it quite odd. I don't eat a whole lot and she is trying to have me take an injection of Ozempic. I try to watch my… read more

As for our own conditions and illnesses and diseases etc which I hope are progressing and getting better, as for the meds thing I mentioned in the,? This is kinda what is going to happen when you take that med, I have some slight little effects of them, a maybe a medium effects with also now and then, but what about the effects that are the ones you didn't expect and you went through the effect of, what do you do about that if it happens,then what? Just curious? Because I look at ok I have a… read more

I have had my condition and have thought about this once in a while but I have haven't been let in on it plays a part of the condition I have from my doc and the other people in the medical field etc, I have on my own put in my life a diet and it is doing ok, what do you think about this ❓ is it a factor in your condition or what?

I'm ok and have accepted my condition I have, but the way my mem is and I take into consideration what the cause of it is, and ok with, I am not good with say remembering some people names but faces, and dates of I don't remember remember either, and I think that I feel sometimes like double checking certain things I have to recheck lets say, I am with the mem i have, but I don't think it's like it was say 20 yrs ago, let's say, I often do too, but I don't think it's a say, you don't have to do… read more

I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.

I think that when I was diagnosed with my condition I was given the right meds, but later after meeting with a new doc out here changed them, I brought up before and told of it, but I personally didn't think I had prob with the meds I was on, she just took me off and put me on the meds I am taking and don't have a prob with either, thankful it worked out that way, my hypothetical question to that would be what if the meds she changed up didn't do what they were supposed to, then I be at square… read more

I'm curious about that because of I looked up online about how many meds are out there, and it was ok with the meds they chose to put me on, Dilantin and phenobarbital and was ok with my condition and such etc, what do you think?

Hi,

I recently wanted to add CBD oil to my regime instead of increasing my Toprimate.
Before I was diagnosed with seizures I had tried thought cloud CBD brain and ended up in the ER for what they thought was a pulmonary embolism. I thought it was just by chance because I had also had dental work done that day and was given epip.

Anyway I bought Charlotte Web CBD which is heard great things about. Gave it a try the other day. I had seizures for 2 days and then ended up in the ER couldn't… read more

I am currently on keppra 3000mg a day clobazam 20mg at night and lamotragine 409mg a day plus i so take 2mg lorazepam at night and i have 10mg of midazolam as emergency medication also have a vns anyone similar to.me x

My Daily Medicine List
1- Dilantin ((Brand Name) caps 400mg. Per day
2- Lamictal (Brand Name) 700mg. Per day
3- Verapamil 80 mg. Per day
4- Zone gran 400mg.per day
5- Dilantin (chewable) 50mg. Per day
6- Tranxene 7.5 mg per day
7- Singular 10 mg per day (Asthma pill)
8- 2 puffs Advair 2 times per day (Asthma)
9- Sleep with BIPAP at night (improves sleep)
10- As needed to stop seizures 2mg Lorazapam
(Which is only given when I have clusters
Or a longer than normal seizure,… read more