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First Time Seizure In Front Of Bestie, How Do I Deal With It?
I stayed at my best friends house, woke up, had a seizure. She was wonderful about it. Cared for me, made sure I was safe. Now I’m feeling strange about it all.
It's dif per person, but I felt like that at first after being diagnosed with at 7 I had at 6 but after a while it took a little time to accept the condition I have, It's not my fault I have the… read more
I Have Been Seizure Free 6 Years. My Neurologist Increased Lamictal Because After Bloodwork, Said It Was Not At Therapeutic Level. Why?
I don't understand why I would need more medication if I am seizure free. It makes me sleepy and depressed. I have been on seizure medication for 50 years and seems to me it causes clinical depression which I have dealt with for many years.
Talk to your doctor. You may be getting too much, which gives you those effects. Do you have the same doctor, or a new one? There must be a reason?
I Missed A Dose Of Lamictal IR Friday Night And I Am Scheduled To Get Lab Work Done On Monday. Will My Blood Count Be Back To Normal?
Thank you! A pharmacist had said the same too, she just didn't seem 100% on it tho.
How Often Do You Increase Your Medication?
It appears every 3-6 months my seizures become out of control again and I need to increase my medication. Things will go well for a bit and then get out of control again and a dose increase will temporarily help. Is this normal? Does this happen to you guys? Im on tegretol, vimpat, and clobazam.
Hello… I used to have a similar problem, until my doctor found the right combination of medicines to get control of the abnormal brain waves (which is what epilepsy is). Now, I have had basic control… read more
How To Know When To Increase The Dose Of Meds?
Besides the increase of the number of seizures, how do you know when to ask your doctor to increase your dose of meds?
I agree with you and your post, and I'm ok with my level,it was a little low, but is ok with my condition I have, I did get a message from my doc, but it was just a message from her and I am thankful… read more
Vimpat And Memory
Since I started taking Vimpat my memory has gotten worse. It seems to have gotten worse as my dose has increased. Has anyone else had this problem? Vimpat has also raised my blood pressure
Ask your doc if vimpat messes up your memory. Our epilepsy is not remembering things. My friend who does not even have epilepsy tells me the older we get she even cannot remember stuff.
Do You All Feel That Our Medications Loses Their Effectiveness After A Few Years?
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
How Long Does It Take For New Meds To Get To A Therapeutic Dose?
I started taking vimpat about 3 months ago now as well as tegretol and I'm still having seizures. My epilepsy nurse did say she can't guarantee I will ever be seizure free but I was hoping the seizures would decrease.
Welcome Lydia and Leslie Staring and urinating are a part of it Lydia your doctor 👩‍⚕️ he or she knows your epilpsy to ladies talk to me anytime and ask your doctor to
Going To The Eye Doctor With Photo Sensativity
I am photosensative. Even a flashlight, or headlight in the eye can cause a seizure. I have to go to the eye doctor, which in the past has used lights and what not. Has anyone else who is photosensative have any issues when they go to the eye doctors?
I have the same reaction and my optician knows that Im light sensitive especially my left eye. I have optical neuropathy due to B vitamin deficiency. I have metabolic issues and always become very… read more
Does Anyone Go To The Doctor And Forget What The Doctor Said?
I had a neurologist appointment. I know I answered most questions like I know what I am talking about. But when I get home and try to explain to my husband what the doctor said, I don't remember. I don't remember why I need a test? I don't remember what I said. I feel so dumb. My spouse usually goes to my appointments, but couldn't go this time. He gets frustrated when I don't have the information. He thinks that sometimes doctors just want to do tests to get information for statistical… read more
@A MyEpilepsyTeam Member
That’s one reason my parents go in the room with me while I’m seeing my neurologist. They remember all of the instructions my doctors tell me. Plus I need a ride.
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