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Hi ... Any Canadian Members On Here Who Have Ever Communicated With MAiD ? (Medical Assistance In Dying)
Not me. Do you have a friend of family member who is at the stage of considering this?
Whats XL Events On An EEG?
what they are looking for is abnormal behaviour. so too many spikes can mean seizures..
Does Epilepsy Qualify As A Handicap
I am receiving the DTC in Canada 🇨🇦. People say that it is hard to get now . The government is more strict about what is considered a disability. Also it depends on how your neurologist words are on… read more
What Do You Put In A Overnight Hospital Bag For Epilepsy?
@A MyEpilepsyTeam Member , through all the times I had inpatient EEG , the Nurses always made sure I moved and walked around and some. So the nurse would come by once every hour to , take a walk… read more
Medical Assistance In Dying
Just wondering if anyone else has considered this? I'm in Canada, where it's legal. I'm just starting the paperwork. I've been experiencing grand mals and less often, petit mals since 1982. Tried meds (tegratol, then dilantin) for 25 yrs; couldn't handle side effects. Have had medical marijuana license since '09, but the seizures have gotten very bad over the last 10 yrs and my quality of life and mental health are declining. Just curious if anyone else is familiar with it or had a loved one use… read more
Legal here in Nevada and given for epilepsy as only proven medical reason for marijuana
We Have Our Way To Get Our Meds , You Ever Had To Pay Out Of Pocket For Them, For Whatever The Cause Was,?
I've had it happen to me a couple of times, I am not sure if it was my insurance with, my copay, or the company was short of supply not having enough, but I have and was a little expensive I'd say, out of pocket is a bit expensive and ran a pretty penny, it's happened a little while ago but not recently, what are your thoughts here?
Yes. I always had to pay for my meds until I finally signed up with Pharmacare to find a doctor- since then they paid for my meds. Too bad I didn't do it earlier.
Help With Medical Bills?
Just asking for people's advice, I am getting all the bills in for having my epilepsy surgery, the 2 stays in the emu and it is very pricey and I've been off work for a couple months from the surgery, Does anyone know how I'd be able to get help paying for them? Thanks in advance!
Naomax can't you get on Medicare and/or medicaid?I'm on Medicare and if I hadn't it I don't know what I would have done.the CAT scans,the MRI's,the depth electrodes.I couldn't possibly have had all… read more
I've Asked This ❓ Before, But They Say You Shouldn't Do That Or This With The Condition We Have, But Say You Wanted To Try Something New,
I tried out cross country skiing once and didn't have a prob with, but what about if i wanted to try down hill skiing and see what it does, and was interested in doing that, what would prevent me from doing that, I know that I have a condition of epilepsy and what most of my triggers are, but what would be the prob with that? Or anything else that I would like to try out, I am ok with people's opinions on what is a preventative measure for me and my life with, but how do I know if I don't try… read more
It is your life and I think you should try anything you want. That being said you have epilepsy and I think that has to be considered when trying something new.
For Those Who Drive….
How long has it been since you had a seizure? Have your Doctors said it was okay to drive?
@A MyEpilepsyTeam Member Giving up driving can sometimes feel like giving up air. I know that is an extreme comparison, but loss of freedom is crippling.
Anybody Else Get To The Point Where They Just Want To Down Tools And Let Someone Else Make Decisions For You? I’m Exhausted.
@A MyEpilepsyTeam Member
That’s how my whole life has been. My parents make most of the decisions for me.
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