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Freedom With Epilepsy
Do you feel free to walk around or go places by yourself without having to worry about a seizure?
I get lost too easy. Encephalitis left me with seizures and cognitive damage. But if you take me back to the neighborhood I grew up in I can go anywhere and remember every shortcut and names of… read more
Does Anyone Know When A Seizure Is About To Come On?
I have seizures time to time and don’t know about them til it’s over and if someone seen it. If alone, I just feel very tired, hurt myself, or have a brain fog for who knows how long.
Not, but are more stable now and no prob my opinion
Dementia
Has anyone ever developed dementia from their epilepsy?
My memory problems have gotten much worse this past year. I had diagnostic testing with a neuropsychologist and saw my results online. It says Major neurocognitive disorder/Dementia.
My Dr has been to busy to call, makes me angry, and his nurse can't tell me anything. Just wondering if anyone had any information? I'm just worried and scared.
I started to develop dementia but I was also taking antidepressants off label and propranolol for headaches and high blood pressure. So I asked my New neurologist to wean me off and when I was taking… read more
Atonic Seizure What Do You Feel ? What Trigger Them?
Ellen : when you have these seizures you’re awake through them. You become unbalanced/ wobbly. My eyes feel different. Sometimes it gets bad that I can’t stand on my legs feel jiggly. Is that how you… read more
Hi All, I’m Recently Back After Being Gone A Longer Time And Having Some Serious Testing.
After one of the rounds of my testing, where they had taken me off meds to create seizures, they put me on the wrong med that created a lot of seizures. What would you do? This caused permanent damage I think.
If the previous medication was controlling the seizures. I would ask for that specific one again and stop taking the new one. Doctors always switch medication thinking than guess what will stop you… read more
Does Anyone Have An Opinion About Cannabis Oil For Epilepsy?
No. I do not. I do give CBD to my dog for her bad, arthritic hips. She was getting a point of not walking even outside to potty. I was messaging her and giving her treats with bone supplements. But… read more
Help
My son is now having an overnight EEG and in the moment he was receiving his injection the computer showed Persyst Seizure on pink letters. The spikes could be related to any movement? Like crying for example is he is crying a lot it will show up as a persyst seizure ? Or has he have to sleep and have the spikes to be considered as an epileptic form. Neurologist said that he was assymetric infantile spasms , but he was taking ACTH and he was worst 🥲 is it possible that medicine could make him… read more
During the EEG , the very top Brain is what a person without Epilepsy.
The 2 below are different types of seizures waves
Different Experience
Today I had a really weird day. I woke up doing stuff really weird I took a drink of water and then my medicine being really confused stuttering emotional the weirdest thing was I called my son he answered I went to say hello but instead couldn't talk because I started crying when I was able to talk I told my son he asked why I was crying I said I didn't know then tried to explain what happened even though I don't understand myself has anyone experienced this
Thank you very hate to hear you are having a hard time as well like you I'm glad I'm not the only one I have been having nightmares. Sezuires in my sleep a hard time with the. So please continue to… read more
Has Anyones White Blood Count Dropped Below The Low Level 4.0? If So How Did You Take It?
So, I'm currently having monthly blood tests to monitor medication levels in the blood after a recent increase. Based on my most recent blood test my WBC has dropped to 3.7 and the Neutrophils are now at 1.7 . It is well known that the medication (Tegretol) that I'm on can cause the WBC to drop in some cases.
Now I know these levels are not that low but the thing is I'm on this medication basically permanently until something changes so it's very likely that if it is dropping it will only get… read more
Currently, my seizures are basically non-existent apart from a lot of body jolts and limb jolts + when I worked it out I'm probably having at least one absent seizure a month. But it's very hard to… read more
So Is Anyone Else Getting The Shakes Because Of This?
Just saw a video on FB about a guy that has the shakes so bad that he can barely get food in his mouth anymore and that's what has me asking this question. The first started probably 4-5 years ago and have steadily just gotten worse. I asked my first neuro about them but really haven't bothered since being that they seem really low on my charts of worries, however as they're getting worse it now has me wondering more. It's gotten now to the point where it's very noticeable when I'm eating… read more
Ok, you have the tremors seizures that originate at your heart if the cardiac medication stopped your tremors.
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