Did Any Of You Felt Worse After Starting AED Medication? What Did You Do?
Hello everyone, the title of the question is self explanatory, basically 3 days ago I finally took the decision to start a treatment against epilepsy after many years of going without antiepileptic medication and controlling my seizures by myself. I started taking Levetiracetam (some of you know it as Keppra). It was a medicine of my choice as I also have ADHD disorder and any other antiepileptic would worsen my attention deficit so actually my psychiatrist prescribed it to me because I refused… read more
I started with seizures at 64. Refractory TLE that seems drug resistant. I’ve tried 6 different drugs. Keppra made me suicidal. I’m currently on clobazam. It worked great the fiat month but I’m… read more
For Those Who's Epilepsy Presented In Mid Adulthood, Did Epilepsy Rip The Rug Out From Under You?
Did epilepsy end your ability to drive, work, be creative?
Thank you for sharing. I know how painful it is having to talk about it. I share the same issues. Knowing I am not alone is comforting. I'm sorry you are in the same boat, it sucks I know. 🙏
Lately For Some Reason
For some reason I have been smelling funny things that nobody else smells and then have a seizure. Is that some kind of warning that happens to some people before one?
Yes it's a warning sign get some place comfortable quick
How Long Did It Take You To Recover And Adjust After Having A Seiziure And A Medicaton Dosage Increase?
I saw a similar question posted somewhere else the only difference is the question was: How long does it take you to recover after a seiziure?
And I thought well it's a great question but it doesn't really take into account the adjustment time if there is also a dosage increase. So I thought I would re-ask the question here but with the dosage increase taken into account.
Just to give some context to this I had a TC seizure about 4 months ago now there was a dosage increase I have recovered… read more
I had my meds dosage adjusted a few times and it is different when it happens, but I have gotten my meds ok with my current condition and doc is ok with that also, more stable than before but ok with… read more
Anybody Have Seizures Only In Sleep?
Before I had cranium surgery I had seizures every week awake about 4. After I had surgery, series of seizures every 3-4 months big change.
Can You Name An Event In History That Would Stand Out That Could Mark Your Age.
Ok I know this sounds weird but I'm trying to figure out my age. I'm adopted and even birth certificates notice plural are contradictory. So a church member said I should remember an event from my youngest memory that could help. I Said Regan getting shot. The challenger exploding. Ok he said the 80's that didn't help. So I did discover I like past events though and hearing about them. And I'm not as old as I thought. I don't know what a victory train was bicentennial 76 celebration thing. I… read more
I was born 2 days after Star Trek premiered on NBC. On my exact birthday, Muhammad Ali TKOs Karl Mildenberger in 12 for heavyweight boxing title.
Feeling Cold ,shivering And Goosebumps?
Does anyone get really cold after a seizure or before ?
I've started to take notice of this symptom ,happened after I had a seizure and I remember telling the paramedics that I'm freezing and I was shivering same thing happened to me after a seizure today .
No that be in my book
I would always break out in a sweat
Does Anyone Collect Disability? I Hate To Consider This, But It's Getting Pretty Rough. Any Tips?
I do and I have since I was 18 or 19. I had a boss that gave me a recommendation because he said he didn't want me working at his grocery store having seizures!
I Host A Virtual Support Group For Adults But I Would Like To Start On For Teenagers. Do You Think Teens Would Be Interested?
@A MyEpilepsyTeam Member
You said the cord around the throat sounds familiar. I just saw where your son has asthma. That sounds familiar. After birth I acquired asthma and pneumonia.
How Is Everyone Doing Today
Yes. It worked for awhile, but my body adapted to it and t stopped working.
My Epileptologist tried me on a AED medication that has a side effects of making someone tree. That too worked for awhile… read more