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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 91 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers
12473 questions

Did Any Of You Felt Worse After Starting AED Medication? What Did You Do?

A MyEpilepsyTeam Member asked a question 💭
Somwhere. EA

Hello everyone, the title of the question is self explanatory, basically 3 days ago I finally took the decision to start a treatment against epilepsy after many years of going without antiepileptic medication and controlling my seizures by myself. I started taking Levetiracetam (some of you know it as Keppra). It was a medicine of my choice as I also have ADHD disorder and any other antiepileptic would worsen my attention deficit so actually my psychiatrist prescribed it to me because I refused… read more

A MyEpilepsyTeam Member

I started with seizures at 64. Refractory TLE that seems drug resistant. I’ve tried 6 different drugs. Keppra made me suicidal. I’m currently on clobazam. It worked great the fiat month but I’m… read more

May 4, 2023
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For Those Who's Epilepsy Presented In Mid Adulthood, Did Epilepsy Rip The Rug Out From Under You?

A MyEpilepsyTeam Member asked a question 💭
Allenspark, CO

Did epilepsy end your ability to drive, work, be creative?

A MyEpilepsyTeam Member

Thank you for sharing. I know how painful it is having to talk about it. I share the same issues. Knowing I am not alone is comforting. I'm sorry you are in the same boat, it sucks I know. 🙏

May 2, 2023

Lately For Some Reason

A MyEpilepsyTeam Member asked a question 💭
Chadbourn, NC

For some reason I have been smelling funny things that nobody else smells and then have a seizure. Is that some kind of warning that happens to some people before one?

A MyEpilepsyTeam Member

Yes it's a warning sign get some place comfortable quick

June 7, 2023

How Long Did It Take You To Recover And Adjust After Having A Seiziure And A Medicaton Dosage Increase?

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU

I saw a similar question posted somewhere else the only difference is the question was: How long does it take you to recover after a seiziure?

And I thought well it's a great question but it doesn't really take into account the adjustment time if there is also a dosage increase. So I thought I would re-ask the question here but with the dosage increase taken into account.

Just to give some context to this I had a TC seizure about 4 months ago now there was a dosage increase I have recovered… read more

A MyEpilepsyTeam Member

I had my meds dosage adjusted a few times and it is different when it happens, but I have gotten my meds ok with my current condition and doc is ok with that also, more stable than before but ok with… read more

March 20

Anybody Have Seizures Only In Sleep?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
A MyEpilepsyTeam Member

Before I had cranium surgery I had seizures every week awake about 4. After I had surgery, series of seizures every 3-4 months big change.

May 6, 2023
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Can You Name An Event In History That Would Stand Out That Could Mark Your Age.

A MyEpilepsyTeam Member asked a question 💭
Fallon, NV

Ok I know this sounds weird but I'm trying to figure out my age. I'm adopted and even birth certificates notice plural are contradictory. So a church member said I should remember an event from my youngest memory that could help. I Said Regan getting shot. The challenger exploding. Ok he said the 80's that didn't help. So I did discover I like past events though and hearing about them. And I'm not as old as I thought. I don't know what a victory train was bicentennial 76 celebration thing. I… read more

A MyEpilepsyTeam Member

I was born 2 days after Star Trek premiered on NBC. On my exact birthday, Muhammad Ali TKOs Karl Mildenberger in 12 for heavyweight boxing title.

October 12, 2023

Feeling Cold ,shivering And Goosebumps?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

Does anyone get really cold after a seizure or before ?
I've started to take notice of this symptom ,happened after I had a seizure and I remember telling the paramedics that I'm freezing and I was shivering same thing happened to me after a seizure today .

A MyEpilepsyTeam Member

No that be in my book
I would always break out in a sweat

May 9, 2023

Does Anyone Collect Disability? I Hate To Consider This, But It's Getting Pretty Rough. Any Tips?

A MyEpilepsyTeam Member asked a question 💭
Bath, OH
A MyEpilepsyTeam Member

I do and I have since I was 18 or 19. I had a boss that gave me a recommendation because he said he didn't want me working at his grocery store having seizures!

June 19

I Host A Virtual Support Group For Adults But I Would Like To Start On For Teenagers. Do You Think Teens Would Be Interested?

A MyEpilepsyTeam Member asked a question 💭
Baton Rouge, LA
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
You said the cord around the throat sounds familiar. I just saw where your son has asthma. That sounds familiar. After birth I acquired asthma and pneumonia.

April 13, 2023

How Is Everyone Doing Today

A MyEpilepsyTeam Member asked a question 💭
Virginia Co cavan
A MyEpilepsyTeam Member

Yes. It worked for awhile, but my body adapted to it and t stopped working.

My Epileptologist tried me on a AED medication that has a side effects of making someone tree. That too worked for awhile… read more

April 8, 2023
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