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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 83 answers

Are You Frustrated With Finding Effective Treatments For Epilepsy?

By A MyEpilepsyTeam Member 167 answers
12494 questions

Memory

A MyEpilepsyTeam Member asked a question 💭
Raynham, MA

Hi, although my short term memory is really bad and I occasionally fumble with my words lol.. has anyone experienced forgetting how to spell normal words . It happens to me a few times a week and it's very aggravating. 😠

A MyEpilepsyTeam Member

I hate and love autocorrect as a result because my thinking shifts when it kicks in and I can't remember them homynym or what I was trying to say sometimes. It's like wordfishing 2.0 ( written… read more

April 25, 2017

Keppra

A MyEpilepsyTeam Member asked a question 💭
Caernarfon, UK

yesterday i saw a specialist with my epilepsy, me and her decided that i should try Keppra.
But i didnt realise that there are so many negative effects with mood while taking this medication, has anybody any experience please with this medication or advice, i would be very greatful.

A MyEpilepsyTeam Member

I've had the mood swings while taking Keppra

May 11, 2018

How High Is Your Dose Of Lamotrigine?

A MyEpilepsyTeam Member asked a question 💭
Moncton, NB

Mine is 300mg bid
Only 2 grand mals since 2015 and monthly absence seizures

A MyEpilepsyTeam Member

That doesn't matter what another person dosage is. I say that because the number of milligrams you take, of a medication, goes by your medical history, weight, age, and height to tell how many… read more

March 20

How Many Of You Fellow Americans Will Face Repercussions Or Completely Lose Your Medical Insurance With TrumpCare?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

Massachusetts had a medical insurance plan for all of its citizens before the Affordable Care Act became law. However, I do know whether the state will have the funds to reactivate this law if the US Congress passes their replacement for the Affordable Care Act. As I told my sister, Celeste, who I have become a dependent to (no income at all for the last two years), I will not accept her taking on the burden of full price for my medications if anything close to TrumpCare is passed into law… read more

A MyEpilepsyTeam Member

I don't know how they work it, but some drug companies will work with you on getting your medicine. You may want to check with your doctor or look on the company's website to find out. I may need to… read more

May 28, 2017

Twitching

A MyEpilepsyTeam Member asked a question 💭
Cessnock, AU

I have been having more seizures this year (10 so far) but what I want to know is why (when I'm not having a seizure) my body twitches randomly. My husband told me he can feel me twitching during the night in my sleep. Am I the only one that this happens to?

A MyEpilepsyTeam Member

Hi, I have gramd mal but I also have these twitches. Some during the day but mostly at night. Strong enough to wake me up. I was told these may be myclonic seizures. I'll know for sure after my eum… read more

March 25, 2017

How Do You Deal With The Emouins Of E?

A MyEpilepsyTeam Member asked a question 💭
London, UK
A MyEpilepsyTeam Member

Epilepsy is a bad disease and one that is difficult to fight for sure
As I've gotten older it has seemed to get worse. From seizures to even worse memory and things
I see written
One thing for sure… read more

April 1, 2017

I Don't Know But Wen I Had My Seizure I Was Aware It's After I Lost Consciousness Is That A Compex?

A MyEpilepsyTeam Member asked a question 💭
London, UK
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Funding for cannabis is not available from the UK NHS as I have mentioned cannabis to my Epilepsy Consultant. I would move to the USA if the funding for cannabis was available… read more

April 4, 2017

Food/ A Proper Diet/ Do Food Cause Triggers Or If Are You Restricted To A Proper Diet?

A MyEpilepsyTeam Member asked a question 💭
Nashville, TN

I am a Ex Cook and a Epileptic. I cook out of my home and I have a cooking page. And I am starting to make recipes for Epileptics and other disorders, diseases. So I am gathering material, as much research, so I can come up with recipes. I want to help everyone who is struggling or is unable to learn to cook. I wanna give back. I am trying to do right with my life after I have been struggling with Developmental disabilities and Epilepsy for 42 years.

A MyEpilepsyTeam Member

I just posted on my cooking site this past weekend some dishes that I made. That are healthy. Its on Facebook if you want to take a look. Grand Slam Food/Lessons

March 6, 2017

CBD OIL?Complementary And Alternative Therapies

A MyEpilepsyTeam Member asked a question 💭
Palm Coast, FL
A MyEpilepsyTeam Member

What CBD products do you guys use? I take a capsule 1-2/day and I know I feel worse when I don't....

October 15, 2018

Does Anyone Have Migraines

A MyEpilepsyTeam Member asked a question 💭
Eugene, OR

Does anyone have migrainesdoes migraines affect anything with epilesy

A MyEpilepsyTeam Member

I have had them now for two days . I have had epilepsy for over 35 years migraines can be brutal at times .I am laying in the dark in my room right now.

February 22, 2017
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