Quick Links
Resources
About MyEpilepsyTeam
Powered By
How Do You Know You Have Had A Seizure In Your Sleep If You Don't Wake Up Or Have Any Other Signs?
If my lips is sore and headaches and body aches too
Who In Your Life Best Understands How Epilepsy Impacts You, And How Do They Support You?
Great to hear Noah! Hope and positive emotions are our allies and the negative emotions and the negative energy buildup from not venting about the bad things that have happened or simply a bad day… read more
Memory
I know that with one of the 4 epilepsy you have in the brain it shows memory loss, but do you think Medication for Epilepsy would have effect on your Memory other then with the one of the epilepsy which you have?
Where did you end up in Oregon?
To Swim Or Not To Swim
Hi everyone,
I've seen people on here who don't swim because it would be disastrous if they had a seizure in the water. I've seen others post that they do swim. Has anyone been told that people with seizures should never swim?
I have heard that. I swim sometimes.
Can You Set Up A New Prorogram
I have an idea for a new program called Epilepsy Dating. Why not create a program so single epileptic members can meet others? They can search to meet a person of the same or oposite sex, provide a profile , photo and message. Many epileptic members have a hard time living alone.
I couldn’t even turn on zoom.
Stress Seizures?
Anyone experience seizures with no real reason? EEGs Normal. MRI normal. Happens after stressful event (during calming down). (Example: horrible fight with family/high emotions)
Stress is a trigger for me so I try to avoid those feelings as much as possible! One thing I go to instrumental music which eases the stress.
So Over All...if You Take Keppra, Would You Say That Eventually My Dose Will Be Increased?
I have Myoclonic seizures (jerks), but since being put on Keppra, God has blessed me with no jerks, seizures, nothing!!! I take 500 mags., 2xs a day...it’s worked amazingly for a month...how long before they increase doses usually?
I think that would be between you and your condition and your doc, my opinion,
Has Anyone Dealt With This? Has Any Doctor Had A Patient With All Of This?
Please dear God... Someone help me!
At first it started with excruciating headaches... they think its from a lesion on my brain. I was first seen by a doctor just about these headaches in October 2017 and they are still on going
I am in so much pain that I land up screaming and crying
At times I go blind, my eye feels like its swollen.
Severe memory loss
On many occasions I have become unresponsive like the lights are on but no ones home.. Apparently people have shaken me, pushed me, spoken… read more
I find this memory loss very interesting, I have suffered from epilepsy since 1991, and like others on here my memory has been going terrible. I can put a programme on the T.V. and my husband will… read more
Awareness During Seizure
Question: Does anyone hear things around them when having a seizure. I think I just had one but seem to be aware of what’s happening. Just had trouble talking? Thank you for any input.
I have aura during or before a seizure, so I consider them both to be a combination. Aura is a slight warning that I'm about to have a complex partial or partial seizure that I never remember?? Keri
Do You Ever Get Treated Differently When People Know You Have Epilepsy?
When people find out I have epilepsy, they treat me like a baby/kid. They act like I can't do something myself or it might be dangerous for me. I'm taking a carpentry class & the teacher & the nurse thinks it's dangerous for me to do, but there's nothing I'm interested in.
Yes I have but that’s when I realized those people were not supposed to be in my life because no one should have the ability to judge you. Be confident and accept epilepsy.
Sign up for free!
Continue with Facebook
Sign up with your email
