Questions & Answers

Does anyone else always get asked "Are you feeling better now?" in the days after an attack?

I never know how to answer it, the truth is my attacks are so random that I'm often feeling exactly the same and thinking about this makes me worry more

Normally I answer, "yeah fine", but I just think people should think it through more. If you saw someone in a wheelchair, would you ask "are your legs feeling better?"

Just frustrates me

I'm on Keppra 500 mg x4 am x4 pm I see my Docton on Tuesday is anyone on keppra with another med to help stop seizures

Back when I was in school, I was quite clever, I didn't have a problem with big words, I used to remember topics easily and soaked up information like a sponge. Now, I feel stupid. For example, my boyfriend is very knowledgeable (a bit of a know it all ;)), he's always explaining things to me and teaching me abut new, interesting things, but straight after I completely forget all the detail :( and no matter how many times he explains it to me I just can't relay it back to him or anybody else. It… read more

Is it possible to have seizures while awake and not remember anything that happened

I was at the dentist this morning and they want me to my wisdom teeth removed. Is it ok for someone with epilepsy to do that?

I was looking over some very old medical records that I havent accessed before and seen that 1 of my eariest scans showed a smaller left frontal lobe. Nearly 30 years later this morning Ive had a lightbulb moment in regards to many symptoms like speech, handwriting skills, balance and some behaviours or the way I communicate that neuro-typical people may deem to be inappropriate or odd
Remarkable that I was never really aware of this before today! Always learning something new about myself is… read more

When I have a seizure I never know when there going to happen. I go stiff and shake. My family is always there for me overtime I've had one.

So far I've seen three different approaches to an EEG. Nowadays they glue them to your head. About 30 years ago I had a nurse rub my head raw with what felt like sandpaper and then glue it. But back in the early days of epilepsy, they had a dozen needles they stuck in your head. I remember it felt like they grabbed about 4-5 strands of hair and pulled them. It never hurt pulling them out. Sorry if you didn't care to hear this kind of stuff but I just can't forget it.

I'm the kind of person who grew up in a working class family, and as children we were taught how to fend for ourselves, I don't mean to sound like I'm better than anyone else here, I joined this group to get and give support where I could... I'm not here to make anyone feel bad, but I do speak my peace without remorse and sometimes with a lack of sensitivity for that I do apologize...😉

I have a close friendship with my primary.