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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 302 answers

What's On Your Holiday Wish List That Could Improve Your Life With Epilepsy?

By A MyEpilepsyTeam Member 158 answers
12384 questions

Well If Anybody Read My Post About 30 Minutes Ago, Read On. I Didn't Clean The Whole House Or Even Wash The Dishes.

A MyEpilepsyTeam Member asked a question 💭
MCCORMICK, SC

What I did was sweep with a broom big pieces of paper up, I put load of clothes in the washer, and put one in the dryer, ( hand a load washing already and forgot) and yes I have a vacuum but it felt so good to just sweep a small room again. After that I am pooped, tired. My leg is aching, I am eating fruit for brunch right now, I am sweaty, tired and it feels good. Just by doing that one little thing, it helped me see that why we need encouragement and help sometimes, but it stills… read more

A MyEpilepsyTeam Member

Thanks a lot. You really help. Thanks RobertCoffey.

February 11

How Does People Feel When Having Cold Whilst Suffering With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Newbury, UK

as for everyone, as normal; I have no energy, exhausted, achy body, pain etc
however in the last couple of day, I have noticed something different than normal. in my left foot, I have been experiencing tingling and numbness from my ankle to my foot. this has started when my cold started, I don't know if it is linked with the cold or something different.

with my epilespy, I have always been experiencing tingling all the way down my legs every so often due to my medications or something else. in… read more

A MyEpilepsyTeam Member

When I have a cold . I have ups and down . With seizures. It all depends on how severe the cold and cough is

February 23

Is Being Unbalanced Part Of A Symptom Of A Seizure

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA
A MyEpilepsyTeam Member

It can be. I have to find my balance after my seizures and my meds affect my balance. That's why they should be checking that at your neurology appointments.

February 10

Preictal Phase

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

I think this question has been asked and answered, but have you had preictal phases that lasted for days? Before my last seizure, I was feeling very out of sorts, as in brain fog, dizzy, forgetfulness, and a generalized fear that something was going to happen for 2 days before my seizure.

A MyEpilepsyTeam Member

I used to fall very frequently with scars all over my head a few times I had sutures. For the most part my parents (school) said that I would learn how to balance balance my walking etc so Ididn'tgo… read more

February 7

Went To Mozart Performance In San Francisco Had Sz Just As We Were Leaving. Phooey Didn’t Bring Any ER Meds. Pouring Rain. Love To All!

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA
A MyEpilepsyTeam Member

Did you know Beethoven, G.F. Handel,
Niccolo Paganini Peter Tchaikovsky, Robert Schumann all had epilepsy

May 7

I Was Told I Had The Starting Of Dementia . The Specialist In Memory Unit Said It Was Seizures ! Grateful! Has This Happened To You?

A MyEpilepsyTeam Member asked a question 💭
Piedmont, CA
A MyEpilepsyTeam Member

I don't have that, that I am aware of, but I have had my condition of epilepsy since age 7, I think I have a few traits of autism, not one person since I was diagnosed with told me I had, I kinda… read more

May 9

Have You Ever Seen Video Of Yourself Having A Seizure Or Would You Prefer To Not See Yourself Having A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Hesperia, CA
A MyEpilepsyTeam Member

I do want someone to video a seizure of me.

July 8

Anyone Else Have Something Like An Out-of-body Experience When They're Siezing?

A MyEpilepsyTeam Member asked a question 💭
Detroit, MI

Like you can see what's going on or even experience portions of it but have no control at the same time? This is difficult to explain.

A MyEpilepsyTeam Member

Have a great weekend! Josie and I are taking it easy today. The last few years have been more emotionally and physically stressful than I thought. I flew 1200 miles with Josie to visit my Mother in… read more

February 17

Who Writes A Day To Day Dairy For Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Newbury, UK

in the last year, I have started writing what I have done and how I felt each day every day in order to help the doctors or to see if there is a pattern going on. the feeling now, that i've started when do I stop? am I the only one who does this?

A MyEpilepsyTeam Member

I do that, and my dr suggested it. He said help keep track of how I feel mentally and physically. It also serves as a diary to help keep track of my feelings to what I'm feeling, which could induce… read more

February 18

Do You Ever Avoid Human Contact Because You Know You’re Confused And You’re Afraid What Kind Of Mistakes You’ll Make And If You’ll Remember

A MyEpilepsyTeam Member asked a question 💭
Hampton Roads, VA
A MyEpilepsyTeam Member

I use to avoid people, when my seizures were severe. Sometimes if I’m at big family togethers I can’t alway hide

January 22
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