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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 163 answers

Does Anyone Else Get Depressed Listening To Other Family Members Talk About Their Perfect Happy Lives When You Don’t Have Any Of It?

By A MyEpilepsyTeam Member 82 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers
12452 questions

Epilepsy And Smoking,dont Make This Mistake.

A MyEpilepsyTeam Member asked a question 💭
Newark, DE

I was 5 years old when i got my first grand mal seizure,t 62 still same thing.S a teenager started to smoke,they relaxed me.As a kid always so worried about etting a seizure in front of everyone.Typjcal smoker got hooked. when doctor told me copd first reaction was whats that. Started getting more winded,started getting pnemonia, lung vireses ,breathing and even going up steps hard quit smoking 8 years ago,at 62 cant play with grand kid.I know my lungs almost useless.sooner or later going to… read more

A MyEpilepsyTeam Member

Don't get depressed it's not going to help you it's only going to hurt you in the long run

March 25, 2017

Memory Loss Or Forgetfulness

A MyEpilepsyTeam Member asked a question 💭
Tzaneen, ZA

Does any one also strugle with memory loss or strugle to remember stuff? Petty stuff? Like dates or what you did last weekend? Or did you remember to take out the meat to defrost for dinner. Not major happening like milestones those I remember.

Just wanted to know if its just me.

Thanks in advance xx

A MyEpilepsyTeam Member

yes i have seziures and memory lost I carry a little note pad and right things down i should remember i carry the not pad in my shirt pocket
so i can see it when important things mush be done

April 14, 2017

I Have Invisble Seizures

A MyEpilepsyTeam Member asked a question 💭
London, UK

How can let ppl now THIS?

A MyEpilepsyTeam Member

NikBurns I to struggle with stuttering, forget what I wanted to say, and many times I have to think what I want to say before I say it. I could meeting someone for the first time and forget their… read more

April 13, 2017

Difficulty Thinking Of Words

A MyEpilepsyTeam Member asked a question 💭
Huddersfield, UK

Do any of you have difficulty thinking of certain words sometimes. It's as if they're 'on the tip of your tongue'. Then a couple of minutes later you think of it/them

A MyEpilepsyTeam Member

It happens a lot with me. I could get in a conversation with someone and I would get , what I call Brain Farts. I can’t think of the word or name . Yet, it’s one of those words or names I use a lot

January 17, 2023

Milk Or Dark Chocolate

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

Has anyone experienced this? If I eat milk chocolate it makes my seizures worse than eating dark chocolate. For health reasons I should cut down on both and eat more fruit but you know how it is when you have a sweet tooth!

A MyEpilepsyTeam Member

Happy Birthday wishes 😎

January 25, 2017

Heart Issues And Seizures...

A MyEpilepsyTeam Member asked a question 💭
Eugene, OR

Does anyone feel like their heart is pounding out of their chest, like a panic attack before and then even more so after a seizure? I have complex partial seizures.

A MyEpilepsyTeam Member

that's the same type i have

January 19, 2017

Epilepsy And Intercourse?

A MyEpilepsyTeam Member asked a question 💭
Derbyshire

This maybe a silly and inappropriate question to ask.But, does seizures affect sex? Probably not in most cases as I know epileptic people with children. However can it just affect sex in general?

A MyEpilepsyTeam Member

For myself , haven't seizured yet. At the same time I still have to keep in the ratio of possibilities , since I average at least one seizure a day.

Keep in mind that will being deeply intimate with… read more

December 20, 2016

Do Any Women With Epilepsy Want Children But Have Been Told They Can't Because Of The Medication They Are On?

A MyEpilepsyTeam Member asked a question 💭
Worcester, UK

Women who can't have children due to their epilepsy

A MyEpilepsyTeam Member

Good luck All xx

October 24, 2016

How Do I Go About Making A Charity Event And Raising Awareness?

A MyEpilepsyTeam Member asked a question 💭
Derbyshire

Please take the time to read.

I firmly believe that there's not much awarness for epilepsy. I'll explain my reasons for my statement.

Don't get me wrong. We can't expect anyone to be an expert of all disabilities, illnesses, diseases, behavioural problems ect. However it wouldn't hurt people to be a little more educated. It could pay off! And maybe help save someone's life of witnessing an attack!

I asked around 50 people ((would have asked around about 200 people around the area but most… read more

A MyEpilepsyTeam Member

I agree I think the schools needs to be aware of what to do ima parent and my 6 year old grand daughter knows what to to save my life because I quit breathing with mine, and my family won't let me go… read more

October 18, 2016

Complementary / Alternative Treatments

A MyEpilepsyTeam Member asked a question 💭
Salisbury, AU

Does anyone use medical marijuana (CBD oil) for treating juvenile myoclonic seizures? The medicine I take now doesn't completely work, and I'm seeking new treatment options.

A MyEpilepsyTeam Member

Thanks for the info that's amazing! I could only wish but alas I'm still on big pharma drugs, but weaning off the pro levatiracetam, its a horrible drug that turns you into the type of person you… read more

March 20, 2019
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