Questions & Answers

I always thought if it was big ones you call not absences , she said was in and out talking complete nonsense for about 5+ minutes

I’ve been given the opportunity to advocate for the need for more consideration of the side effects of seizure medication on quality of life. Sometimes there’s no impact. Sometimes those we do have are so severe that we wonder if living with seizures would be better. Most of us have experiences that lie somewhere between the two.

There will be doctors, researchers, and big drug companies in the room. I’d like to get quotes from patients and caregivers describing their experiences. Would you… read more

Before menopause, all my seizures were one to two days before or after starting my period and mid-day. Now that I am menopausal my seizures have been at night. Has anyone had a change in their seizure activity post-menopause?

I feel defeated whenever depression sets in. I can block it out for only a matter of time before it overpowers me. At that point, I ride it out.

https://youtu.be/l1SAC1HcAzc?si=7R6_k6JOWjRAl5Dd

I have lost jobs so to having a seizure just because they didn't want to deal with it. I was seizure free 10 years and it ended my job and my firefighting careers both. Has anyone lost do to seizures because of misinformation or people having basically called you crazy?

When I go to new churches, is there some trick to mentioning or hiding the epilepsy? Though I am ten years seizure-free, this has been part of my story, and if I am honest, this is who I am. How long do I wait till this comes out? I hate that this even needs to be asked, but this has come up visiting a former teacher and has left me nervous as I head north for my Master's degree in an all-new church area. I remember that even my brain surgeon stopped visiting churches because they found out what… read more