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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Has Anyone Been To The Mayo Clinic?

A MyEpilepsyTeam Member asked a question 💭
Bozeman, MT

What was your experience? Was it worth it?

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A MyEpilepsyTeam Member

Damn another one tonight. I hate this, so sad.

I Have Malabsorption Issues That Started On Top Of Epilepsy. Anyone Else Need To Take More Meds More Often For Control?

A MyEpilepsyTeam Member asked a question 💭

My pancreas stopped working. I take Vimpat Phenobarbital Felbamate and Diamox.

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A MyEpilepsyTeam Member

I am now taking 100 mgs. Briviact 9 AM and 9 PM, 2 25 mgs. Lamotragine, and 2.5 ML (250 MG) Epidiolex at 9 PM. I also take 15 mgs. Onfi at 9 at night. As a child, I took my meds 3 times a day… read more

Has Anyone Had Success With Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Staten Island, NY

I tried it for a short time a stopped because of side effects. I was thinking maybe we didn't give it enough time. All other meds I have tried have been ruled out due to severe side effets.

A MyEpilepsyTeam Member

I have done better with Fycompa. Still have small episodes but not GranMal ones near as much..

Lamotrigine And Levetiracetam Side Effects

A MyEpilepsyTeam Member asked a question 💭
Bolivia, NC

Hello everyone, can anyone tell me about their experience taking lamotrigine and levetiracetam together? I am starting this treatment together and I am very sleepy, weak and dizzy. Is this normal?

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A MyEpilepsyTeam Member

I was on Lamictal for years with Topamax and when they raised my dose of Lamictal I started having tremors. It was so bad I could get a spoon to my mouth without losing it all. So I was taken off of… read more

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Is Anyone Taking Fycompa? What’s Been Your Experience Like? Thank You.

A MyEpilepsyTeam Member asked a question 💭
Los Angeles, CA
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A MyEpilepsyTeam Member

Yes,I Started With 8Mgs Since 2017.t's The Best Out Of All The Meds That I Have Ever Taken.

Has Anyone Ever Dealt With Physical Aggression And Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Cambridge, MN

My son this past month has been having verbal behavioral outbursts and physical aggression towards my husband and I. After he calms down he will say "what". Is this another complication of Epilepsy or from his Impulse disorder? This is so hard and I do not know how to help him.

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A MyEpilepsyTeam Member

I am on lexapro to help with that.

Covid-19 Vaccine And Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Brooklyn, NY

I’d like to know how members and neurologists feel about getting the covid-19 vaccine. I have tonic-clonic generalized epilepsy. I’m recently controlled and fear the vaccine may lower the seizure threshold.

A MyEpilepsyTeam Member

I’ve had both doses of Maderna. My fear was that because of it I’d have a seizure, it didn’t happen 😀. Before I take any medication I research to find out if it lowers the seizure threshold, if it… read more

How Do I Cope With The Struggle Of Feeling Broken And Afraid Without Going To Group Therapy?

A MyEpilepsyTeam Member asked a question 💭
Webb City, MO

I was a normal child before I got meningitis and developed epilepsy from it, I've experienced one too many seizures that have scared myself and my family alot, even though it's been a year that I've been seizure free, im still worried for the next, I don't wanna have this problem, I feel like there is something wrong with me, I've had confused moments where I have a panic attack thinking I'm about to slip into a seizure and I don't, this whole thing just worries me and idk how to just make… read more

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A MyEpilepsyTeam Member

Excellent!

Genetic Epilepsy And Medication

A MyEpilepsyTeam Member asked a question 💭
Gatineau, QC

When it’s a genetic epilepsy (PCDH19) does that mean that I will always take medication my whole life? As I know that most anti-seizures drugs have long term consequences when taking for a long time.

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member They have to think about both situations all the time. It is easier if you are under control because then you can focus more on managing side effects, but if it's not you have… read more

Has Anyone Had The Stem Cell Treatment Or Are You Considering It?

A MyEpilepsyTeam Member asked a question 💭
Seattle, WA
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A MyEpilepsyTeam Member

I want to

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