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Top 10 search results for "what have you learned about epilepsy that you wish you knew when you were first diagnosed" in Q&A. To see all results and access other features, sign up for free.

Understanding Neurology

A MyEpilepsyTeam Member asked a question đź’­
Melton West, AU

When you were first diagnosed with epilepsy what research did you do? Treatments, alternative treatments?

I want an app for my iPhone that covers epilepsy from diagnoses, types of seizure, treatments etc.

Any recommendations? For iPhones, books or e-books. Thanks in advance ✌🏻

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A MyEpilepsyTeam Member

I developed epilepsy when I was 5. I was a preemie baby. There is scarring on my brain from a 24 hour birth and the fact that my frontal bone was not formed did not help things. The Drs back then… read more

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I Was Wondering If You May Have Autism And Is A Part Of Your Epilepsy And Didn't Know It ?

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I did some research on line and answered a question here about that, I think that i have symptoms of but wasn't diagnosed with my condition I have, what do you think of the question here?

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A MyEpilepsyTeam Member

Hang in there and try and stay pos

How Do You Feel And What Do You Do When People Who Don’t Know Anything Try To Tell You About Your Epilepsy And Seizures?

A MyEpilepsyTeam Member asked a question đź’­
St. Petersburg, FL
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member you go girl

You Were Told You Can Be And Do Anything Anytime In Life When You Were A Kid, Despite Your Condition Or Illness Etc , Do You Think You Did?

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I think I have, I worked multiple jobs and stuff throughout my life and I am ok with that and like what I've been doing with my life, what are your thoughts ? I've never had a specific job I wanted to do or be, I'm thankful for what I have done with my condition and accomplished despite my epilepsy I have,, I have failed at a few things in my life but I am not a failure, I learned a lesson from it and try and prosper and learn and use it down my path of life. I don't quit.

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A MyEpilepsyTeam Member

I know epilepsy did bother me as a kid pulling me from a gang and I knew it was going to have affect on a wished impact but was able to accept that after I did get a few years of psychological help… read more

A? Do You Think That After You Were Diagnosed With The Condition You Have Helped You With What You Are With And Made A Dif Finding Out?

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I myself do think it did, I have accepted the condition I have of epilepsy I y,it did take a while, but got there, It's not a cure for, but at first the not knowing was a scary situation, but I feel that took quite a load of what I have to handle and does make it easier for me and live with, my opinion, what are your thoughts? Curious

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A MyEpilepsyTeam Member

I agree with you, but hang in there and try and stay pos, my opinion

A Neutral? Do You Seem To Be Ok With The Condition We Now Have And Live With? Kinda Know What To Expect And Happen And Maybe Learn About?

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I at first couldn't say when diagnosed with, but over the years I have learned quite a bit, not all but did make it easier for me I'd say, there is alot of unexplored territory about we don't know about, but I think I'm ok with where I am at with the condition I have, still learning as I do from the medical field etc, and my own research and from people's opinions here, what are your thoughts? Curious, hang in there and try and stay pos, I try to, my opinion

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A MyEpilepsyTeam Member

Great answers here all we have to do is deal with the seizures. Brain is so complex the more we learn the better. Relax mind bout always know seizures will pass then try to forget or shrug off. Ease… read more

How Did You Explain Your Epilepsy To Your Kid(s)?

A MyEpilepsyTeam Member asked a question đź’­
Baton Rouge, LA

Did you show them what to do if you were to habe a seizure around them? I just wanna prep myself to have this conversation when my baby gets old enough

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A MyEpilepsyTeam Member

My daughter was glad they figured out why I kept passing out.

Out And About, Do You Let Someone Know Where You Are Going And Say Call Them When You Get There? Or Take Someone Else Along With You ?

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I'll let people know now and then I am going wherever I am, and don't carry my phone on me, I had a seizure a while ago and my wallet and phone was taken from me but , I heard that as for your whereabouts your debit card has a chip that does that built-in, I didn't know that, but does, I am usually ok going out here and there, a tiny concern when I go, but not a issue anymore when I do, what are your thoughts about this âť“

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Me As Well

Since The Condition We Have, Do You Notice Your Seizures More Dif Happening From Before Than Previous And Notice Any Dif Of ? Just Curious

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I think that I myself noticed that about since being diagnosed with and over the years of having my condition of epilepsy and my seizures, I have noticed them and know they happen time to time but it's dif for them now when they do, I think, I used to have say they were happening just at a say uncontrolled way, it was kinda uneasy pattern when they did, but after tests and meds and condition, and treatment etc, like I said my condition and seizures I have of my epilepsy is more stable than… read more

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A MyEpilepsyTeam Member

Mine keep changing. They have changed 3 times since my childhood

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Does The Condition We Have Bring You Down Or Say Get To You And The Way You And Your Lifestyle? Or Not? Wonder About This And Your Thoughts

A MyEpilepsyTeam Member asked a question đź’­
Lakewood, CO

I used to think it was doing that alot more when I was diagnosed with my condition of epilepsy I had, and before I thought it was even more scary because of not knowing what was going on with me and what it was that was disrupting my life, it brought me down into depression and anxiety I'd say, and felt like an outsider and such etc, but over the years I learned to accept it try to learn more about it, and still am, it's been around for 3000 years ago, and is no cure for, but we have come a way… read more

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A MyEpilepsyTeam Member

If you know my story you know I've had many pity parties over the years, & when I'm there, God shows me those who are worse off. I must reevaluate my life's priorities & I see how much I am blessed… read more