Questions & Answers

Ok is there a place that helps young adult live with health issues but can still make decision for themselves?

My seizures are worse in the evening and auras worse in the morning. Is this similar with anyone else?

I take 12 pills a day and unfortunately without them I will have a seizure,I was wondering if anyone had been able to get away from the pills with a alternate medication.....doesn’t help that I live in GA

Is anyone taking a anti-epileptic drug that focuses on neurotransmitters in the brain as thier one of the main pathways that calm electrical activity in the brain. Or any drugs that just focus primarily on neurotransmitters.

I can be just walking, & loose my balance & fall down.

The following is a posting from Harvard Health Publishing about a blood test that might show whether you have dementia.

Blood test might reveal dementia

Research we're watching
Published: June, 2020
Could a single blood test one day enable doctors to diagnose Alzheimer's disease? Researchers writing in the March 2 issue of Nature Medicine say they've made advances in this area. The blood test they developed measures the concentration of pTau181 — a form of the tau protein associated with brain… read more

I was due to have my 8 monthly check up with the neuro at the beginning.of April I had a text to say it would be a phone consultation This was so much easier than the usual face to face which usually involves m husband having to do a 30 miles round trip with me ,park miles away from the hospital climb 4 flights of stairs ( don't like lifts ) I have ' complex epilepsy' & I'm got much more from the phone consultation Anyone else found these phone consultations useful ?

I don’t know when I have or going to have a seizure I get no warning at all but I have tried cutting out certain foods/not looked at certain lights all the common triggers but I’m trying to think outside the box and every time I do my mind goes blank has anyone got any suggestions? But then I think could the answer be closer to home?, I do take medication also I have tried nearly all the common epileptic drugs out there and just want an answer/opinion.
Thank you in advance.

Does anyone have problems participating in life due to the attention/pity the seizures causes from others

I dont have much of a social life any more and thinking of dropping out of my last activity. I just dont like the attention from the seizures. No one is judging me, but The looks of pity is something i dont want Makes me uncomfortable

Im hoping the docs will get a better control of this at some point and than I can resume a life

How do some of you handle this

I ask because I wonder if those of us who which to do so can contact the organization or individual that did so to see if they would be willing and able to send out the word to those who gave up on the site to come back and give it another chance.