Questions & Answers

Are there many people with epilepsy who lead lives that are not really affected by epilepsy apart from the occasional seizure?

I’ve been in a few inpatient EEGs . The Dr. Wants me to show large seizures. But my medication could be near nothing and not showing any Large seizures, that they are looking for . My mild and moderate seizures aren’t enough. I was even offered food or beverages that could trigger my seizures.

Has anyone been diagnosed with TLE so you get focal, generalised TC seizures but later on had testing only to find out that some of the seizures you get are coming from other lobes in the brain not just the Temporal Lobe
This is basically what it looks like has happened to me.

Has anyone else had this or something similar happen? I'm just trying to figure out whether I would still be classed as having TLE after this or whether it's now something completely different.

To add some context to… read more

Ever since I have had my diagnosis with epilepsy I have been nothing but tired all the time. I know my age could have played a part in this but this is beginning to take a toll on what I am able to do in a day

The umbilical cord wrapped around my neck and I inhaled poo at birth. I wasn’t breathing for a while and doctors say that is why I have seizures.

My wife is having a really hard time adjusting to our new life, she doesn't drive and I can't now, she asks all the time, what do we want to do, where do we want to go etc. I need to hook her up with some support of some kind.

Thanks.

Year's ago I had a battery operated watch, then I noticed if I wore it for a long time all day and night I had more seizures, since I stopped wearing it my seizures have not been so often.

I'm afraid of not getting enough exercise, having fatigue makes you have less exercise.

How is everyone