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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 91 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers
12454 questions

Last Night I Had Bad Jerks R Side. Felt Really Blecch. Took Rescue. Still Scared. What Is This???

A MyEpilepsyTeam Member asked a question 💭
Seattle, WA

Spasm then extending, every few seconds. R,LTLE, XCopri, Lamotrigine, Cannabinoids, here. Scared!!! Help!

A MyEpilepsyTeam Member

Hang in there and try and stay pos,

November 1

Anyone Have A Certain Smell Of Herbs Ect That Can Trigger A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I know that the smell of Rosemary can trigger a seizure, + some air fresheners, I like and use Lavender but I don't know if is a trigger anyone else had any problems with it?

A MyEpilepsyTeam Member

I never knew that, thanks for your support 🙏

October 28

Do You Guys Have Any Good Ideas For A Job

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I want to get a job.I just don't know where to start.Cause I'm a introvert and I'm not very good with talking to people and I'm also afraid to work at a fast food place because of my seizures. So I was thinking maybe like an overnight shift for a store like stocking the shelves or maybe a cashier. I'm not really good at math, but I'm trying to figure something out. Because I believe I needed to be more active and get out the house.So I guess I'm asking for advice

A MyEpilepsyTeam Member

Do what you feel comfortable with. I did Stocker at a Dollar Tree for about 6 months before going to a mortgage company. Worked with that company for about 2.5 years before I left to go back to my… read more

October 23

I've Been Doing Fine With My Medications. All Of A Sudden I'm Having Aura Breakthroughs.

A MyEpilepsyTeam Member asked a question 💭
Des Moines, IA

I am not eating properly with my schedule and very stressed with buying a home

A MyEpilepsyTeam Member

Good luck Pam I think you’re going well with all going on, that’s a lot going on. I recommend walking & music for 30-40 minutes & trying to switch off for a few minutes, itll be ok & good luck xx

October 26

Can You Drive To And From A Clinic To To Get Set Up For An At Home EEG?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

The clinic said I can, others have said I can't in case the tests trigger a seizure....

A MyEpilepsyTeam Member

The hubs drove me, but I couldn’t drive anyway at that time anyway.

October 21

I Read Up On The Keppra They Have Me On. It Certainly Filled In A Lot Of The Blank's I Needed To Know. Thank You Everyone

A MyEpilepsyTeam Member asked a question 💭
Waynesboro, GA
A MyEpilepsyTeam Member

It's dif per person,as for the med (s) go, what the effects of a med may not have the similar effects to someone else, I don't think they are the same, etc we are all different than each other, I have… read more

October 12

Good Morning Too, All My Wonderful Friend's. I Hope Everyone Had A Wonderful 👍 Night. I've Been Praying 🙏 For You All.

A MyEpilepsyTeam Member asked a question 💭
Waynesboro, GA
A MyEpilepsyTeam Member

Thank you, Melissa. I feel comfortable stating that we will all follow up on your proceeding toward success in controlling seizures. We welcome your contact anytime. Please try to get enough sleep… read more

October 12

I Hope Everyone Has A Wonderful 👍 Night.... I Will Be Praying 🙏 For All Of You. God Bless Everyone. Amen

A MyEpilepsyTeam Member asked a question 💭
Waynesboro, GA
A MyEpilepsyTeam Member

I hope you have a good night too. I will be praying for you as well.

October 10

Job Search - Round 2

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

Thankfully, I have a FT job with an amazing supervisor, but October will mark 1 full year of trying to get a second job to help pay medical bills. I started with weekend or evening jobs but I can't drive and my transportation system isn't active on the weekends and doesn't get me there in time for evenings. I've tried remote part-time, Upwork, Fiver, Etsy, transcription, seasonal, handing out my resume to places within walking distance, and then trying a second full-time remote position or… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I'm not sure what the US is like with this these days but in AUS a lot of the bigger companies have disability hiring policies so it can work out better to disclose it.

September 30

Is Anyone On Fycompa? My Neurologist Has Advised He Will Be Changing Me From Clobazam So I'm Trying To Find Out If It Suits. Thank You.

A MyEpilepsyTeam Member asked a question 💭
Northern Ireland
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I Stopped Vimpat With No Problem. If A Medication Isn't Working Or Is Effecting Me, I Will Stop Taking It.

September 27
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