Top 10 search results for "Responsive neurostimulation (RNS)" in Q&A. To see all results and access other features, sign up for free.

Does anybody have a VNS and an RNS that work together? Im trying to get the RNS but at a Previous meeting my dr said they were unsure because i already have a VNS. The last time we spoke to her she said shes spoken to other dr’s and they do have patients who have both and that they work together somehow? My VNS doesnt help me thats why she told us that, i told her we can turn it off and she gave us that info. I’d like to know if there’s anyone on the app who has both and how they work for… read more

My partner is scheduled to have RNS surgery this month. I would appreciate people sharing their experience tremendously. Recovery time? Any difference in memory? Did seizures decrease?

I was diagnosed with epilepsy when I was very young. I took Dilantin and Phenobarbital , until I was 19. I was then put on tegretol and off Dilantin . Throughout my life I was put on many different seizure medications. None of the medications I took would even lesson my seizures. Throughout my life, I always took my pills and never stopped them. I got numerous EEG TESTS but, the information didn’t give my neurologists any new or different information concerning my seizures. After, my children… read more

This isn't an advertisement as I will not mention the device or manufacturer but I'm part of clinical trials on a device designed to warn me, via my phone, if I am likely to be about to suffer a seizure. It works via bluetooth and an ongoing 2 channel EEG which measures your brain waves then sends them to a distant main frame. That main frame builds a model of what happens when you personally suffer an attack, then looks for those patterns in real time. If it flags one of them up, it sends a… read more

My adult daughter just had brain surgery (SEEG), where the doctor inserted 16 wire probes into her brain. She was in the hospital for about 2 weeks. She is home but, she is still having a tough time. She is always nauseous, has constant terrible headaches, and she sleep walks, which she never did before. She is depressed and can’t function or focus on anything for too long. The doctor said her brain has to “reboot “ which could take a couple of weeks. It now been about 3 weeks, she doesn’t seem… read more

So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.