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How Would Youmake The World Undestand How It Feels To Live With Epilepsy
You see people who make fun of people with grandmal seizures or use them in their pranks.
So how would you go about making them understand what its like to live with epilepsy and what its like in those moments? When i think about how i would go about i can honestly say I dont know and I dont know if i could ever make them understand because they dont walk in my shoes or anyone elses shoes with epilepsy
I wrote a book. Hopefully its been helpful to people who don't understand epilepsy. Either they have loved ones that have epilepsy or they were recently diagnosed.
Does The Condition Me Or You Have Seem To Play A Role On How You See Yourself? Curious
I think that at first when diagnosed with it did, I kinda know what was going on with me and what other people thought about me as well, I have to admit it wasn't a easy thing to do in the situation at hand, I felt like a outsider and kinda a weird person in general, but I over the years came to get to understand what I had, that took me time as well, but I got to the point of finally accepting the condition of epilepsy and live with, it's alot better than before and is more stable than before… read more
I agree
A Neutral? As For Our Conditions We Have, And How People See Us And Think, What About The Other People And Their Conditions And Such ,more
We feel a bit like some don't understand what we actually go through, but what about all the illnesses and diseases and conditions and cancers etc, and the people that have them, what is it like to have that and we don't know what it's like to have that condition that they have? Nothing against anyone and your thoughts about this ❓ but what do you think about this?
Other people may have invisible afflictions just like us, but they are not visible so we don't know what they have unless they tell us. It has to be visible to know, ;like someone using crutches or a… read more
? I'm Not Sure How To Put It, But It's A Neutral One And A Curious One Also, This Has To Do With Our Conditions We Have, More Below
And nothing against the reply you give out, but does it seem like before you had the condition we now have the people who were in your life or came into your life or theirs, treat you the same way as before and it's not a issue with them with you having your condition you have, or when they found out they started or seemed like they treating you differently cause you have that condition you have, I'm ok with the care and concern, but I don't like to treated like extra care if you understand what… read more
@A MyEpilepsyTeam Member
All of my childhood friends did that to me too as we aged.
Solution Of Health
Hello hou are all here , I would like if it is possible to cure epilepsy by reducing the dose of medication i use ( one of tegretole 400 mg ) with a long time without resorting to surgery. ? I don't have any types of seizures for more than 2 years this is plan of my doctor i don't know if i will succes or no . i hope find who have same of my situation .?
Oh, good luck!
Do You Ever Get Treated Differently When People Know You Have Epilepsy?
When people find out I have epilepsy, they treat me like a baby/kid. They act like I can't do something myself or it might be dangerous for me. I'm taking a carpentry class & the teacher & the nurse thinks it's dangerous for me to do, but there's nothing I'm interested in.
Yes I have but that’s when I realized those people were not supposed to be in my life because no one should have the ability to judge you. Be confident and accept epilepsy.
Why Do You Think There Is A "stigma" With Epilepsy
1. could it be fear of the unknown?
2. the act of body movements and sounds during an episode?
3. Do they think we are going to die?
I just don't understand it! If these are the reasons I personally can think of many
illnesses that I dont't know much about, there are orher illnesses where people make noises or movements. There are other illnesses that are a higher risk of death.
I think that there is a stigma related to epilepsy rooted in the past. People in some areas of the world still believe that those with epilepsy are cursed or possessed. They may associate it with… read more
Can't Keep A Relationship
I'm finding it hard to keep a relationship due to epilepsy I'm afraid to tell them incase they run or get freaked out over it. It's frightening any advice
When I first started dating the man I eventually married, I didn't tell him immediately. I probably told him on the third or fourth date. I'm sure your need to share the info could depend on how well… read more
Since The Condition Of What We Have Been Diagnosed With, Do Feel Being A Little Dif Of Yourself Or What? Even As Other People See You ?
I think I may have felt like that at first when I was diagnosed with my condition and such etc, but I over the years accepted my condition I have, some people will understand what I have and some maybe not, I don't let others bring down because they don't understand, it's not my fault I have a condition I have but I don't let my condition or someone's opinion get to me, especially if they don't get what I tried to let them know about, what are your thoughts about this ❓ how do look at this?
My epilepsy diagnosis was a relief- explained all the wierd thoughts, feelings I'd had,knew was a physical reason for. Was 17 had had a grand in class, told my principle teacher all friends bout… read more
Relationships And Epilepsy
Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?
It was worth leaving if Someone treated You like that 💜
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