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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 95 answers

What's A Common Misconception About Epilepsy?

By A MyEpilepsyTeam Member 304 answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A MyEpilepsyTeam Member 72 answers

What Epilepsy Symptoms Keep You Up At Night?

By A MyEpilepsyTeam Member 222 answers
12502 questions

Right Now Not Happy Kind Of Stressed Hoping My Luck Changes.but When A Son Or Daughter Dies How Does Our Condition Expect Us To React?

A MyEpilepsyTeam Member asked a question 💭
Skokie, IL
A MyEpilepsyTeam Member

I am so sorry. You will be in my thoughts.

November 2

Should I Have To Apologize?

A MyEpilepsyTeam Member asked a question 💭
Huntington Beach, CA

When I have a seizure I feel like i’m made to feel guilty about it to the point I need to apologize. This isn’t right is it?

A MyEpilepsyTeam Member

I can so relate to this. As canadian it's automatic to apologize to paramedics or urgence sante after a seizure. I know it's not necessary but it's the way I was raised maybe.

October 26

How Do You Experience Auras Symptoms?

A MyEpilepsyTeam Member asked a question 💭
Rochester, NY

My seizures have been under control with medication. I’ve not had auras with my seizures. I occasionally have “fuzzy headaches” (atypical headaches) confusion, difficulty speaking (know the word but struggle to say it), physically off balance. I worry they are auras.

A MyEpilepsyTeam Member

Diff reactions but still for same reason a seizure screws things up. Like a dream while awake unique how we feel too. Ease mind bout any weird feelings just by knowing why to help cope during or after… read more

October 19

Changing Anti Seizure Meds

A MyEpilepsyTeam Member asked a question 💭
New Plymouth, NZ

Hi
I am about to change seizure medication shortly. I’m currently on Tegratol and about to change to Lamotrigine.I am wondering if anybody has done this and how they found the transition? Any tips or advice would be helpful please

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had my medications changed so many times. When I first start taking a new medication I’ll make it longer without a seizure but then they all return

October 16

Has Anyone Used A Dog To Help You When You Have A Seizure

A MyEpilepsyTeam Member asked a question 💭
Cave Creek, AZ
A MyEpilepsyTeam Member

She was trying to get you somewhere safe. And wanted someone to call for help. Visiting my daughter's dog automatically knew to do.

October 21

I Might Have Asked This Before, But Do Songs Trigger Seizures In Anyone? If So What - It's Interesting

A MyEpilepsyTeam Member asked a question 💭
Cork, IE
A MyEpilepsyTeam Member

I love live music and concerts; the excitement and being included in the moment, the crowd's involvement, even the loudness. It's sort of amazing that those things aren't triggers for my seizures, and… read more

October 15

Do You Think You Are Falling Victim To Psychogenic Non-epileptic Seizures (PNES) & Not Epilepsy? My Family Thinks So.

A MyEpilepsyTeam Member asked a question 💭
Toronto, ON
A MyEpilepsyTeam Member

I have had some doctors that can be real jerks. I hope you find someone that listens. Only you know how you feel

November 5

Anyone With Nocturnal Seizures?

A MyEpilepsyTeam Member asked a question 💭
Jamaica, IA
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
No, I don’t have them anymore. At least, I can say I haven’t had them in several years. Ugh! I’m so sorry yours have returned. While I can’t suggest anything, I can at… read more

October 15

Does Anyone, Like Me , Think That A Regular Sleep Schedule Helps Prevent A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Racine, WI
A MyEpilepsyTeam Member

Hang in there and try and stay pos

October 13

Do You Think Being On You Period Can Trigger Your Seizures

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I feel like they can because when I'm on my week i would sometimes have 2 or 3 seizures during that week even though i took my medicine and haven't been having seizures for weeks.This is mainly a question for the girls but anyone can answer

A MyEpilepsyTeam Member

So did I, until I stopped having them.

October 16
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