Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Are Your Top Tips For Dealing With Epilepsy In The Heat?

By A MyEpilepsyTeam Member 130 answers

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

By A MyEpilepsyTeam Member 90 answers

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 269 answers
12445 questions

How Often Do You Get Accused Of Faking A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Seattle, WA
A MyEpilepsyTeam Member

Cierra if its your birthday happy birthday and if it isn't happy early birthday.if your birthday has passed happy belated birhday

September 22

How Does The Changing Of The Season Affect Your Body And Motivation?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

Sounds like you learned the hard way my friend.

May 5, 2023

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful

A MyEpilepsyTeam Member asked a question 💭
New Orleans, LA
A MyEpilepsyTeam Member

I had 2 right temporal lobe lobectomies, removing 13%dead brain tissue of the 18% damaged. Unable to remove all 18% because it was too close, making too risky to area of other dead brain tissue. Or it… read more

December 21, 2023
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

Elon Musk Is Concerned About People With Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Moscow, KS

I found an article about Elon Must developing technology which can help people like us and not only, but also those with vision/hearing problems control our conditions by installing brain implants
'The founder of Neuralink, Elon Musk, says the technology can restore limb functionality, loss of memory from Alzheimer’s, stop epilepsy attacks, fix speech impediments from strokes, and restore vision and hearing problems.'

If course my first idea was that it is so cool that they develop it, but… read more

A MyEpilepsyTeam Member

Just another way for him to make money for himself and draw attention to himself and his companies and promote them . More PR.

November 21, 2022

Does Anyone Experience Paralysis?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I get odd moments of paralysis I find my symptoms very strange , like this morning my legs and arms would go in odd positions and then I can't stand completely straight and just bend down at this point I'm forced to go to the ground and the top half of my body is paralysed then it continues to my whole body so I just lay there till it passes I know paralysis happens after a seizure but does it happen before one 🤔.

A MyEpilepsyTeam Member

Yes. Sleep paralysis.

December 28, 2023

Has Increasing Your Calcium Intake Helped With Your Seizures?

A MyEpilepsyTeam Member asked a question 💭
Sydney, AU

I found interesting information about calcium and it's role in the body and how calcium deficiency can cause seizures in people.
https://youtu.be/qCvIrINMG20

A MyEpilepsyTeam Member

Vitamin D, another vitamin D .. & folic Acid

September 11, 2022

Music/Noise A Trigger For Seizures

A MyEpilepsyTeam Member asked a question 💭
York Haven, PA

Does music or noises cause seizures?

I have noticed that a few of my seisures have happened when there was loud music playing. Also when listening to music via my headphones I sometimes get a ringing/odd noise or feeling (probably an arura). Ill pause the song and it will go away under 30 seconds.

A MyEpilepsyTeam Member

Any kind of vibration,stress,strobe lights,humidity and to much caffeine bring on my seizures

July 6, 2023

How Does Having A Seizure Make You Feel?

A MyEpilepsyTeam Member asked a question 💭
Cedar Lake, IN

in public or privite... how do you feel before and after a seizure.
for me. i feel nothing before and aruas and simple partials. when i am having complex partiail i feel useless and alone. right after my grand mal (tonic-clonic) i feel useless, lost alone, and confused.

A MyEpilepsyTeam Member

The feeling is very understandable & you're not alone of having those feelings and embarrassments.

December 13, 2022

Noise

A MyEpilepsyTeam Member asked a question 💭

People who have epilepsy do they not like noise. ?
I cannot handle to much noise at all. Cant handle loud music ,loud tv, people loud talking, kids crying.

A MyEpilepsyTeam Member

GiaLynn, we must have the same kinda of Epilepsy or be the exact same person. Which i doubt since you’re female and i am male.

June 21, 2022

Did You Know That Vimpat Can Be Ordered In Generic Form?

A MyEpilepsyTeam Member asked a question 💭
Palm Harbor, FL

It’s called Lacosamide

A MyEpilepsyTeam Member

Present day, they do Have a generic brand for Vimpat. When I was on it, Vimpat was brand spanking new. There was no generic at the time.

October 15, 2022
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in