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His Awaiting An Appointment For Vagal Nerve Procedure Has Anyone Had It Done And Does It Work
@A MyEpilepsyTeam Member
I chose to have my VNS completely removed when it didn’t help me. I could have just had it turned off too.
What Does VNS Mean?
@A MyEpilepsyTeam Member Oh please I would really rather Elon musk was not involved.
VNS And RNS? I Have A VNS And My Neurologist Asked Me To Look Into RNS...so Ive Come Here. Ive Never Heard Of Anyone Having Both...?
@A MyEpilepsyTeam Member
I can tell you everything about the RNS. I like it more than the VNS.
Is There Anything Else Could Be Done Besides Taking Medicine
I do take my meds for my condition, but I do my daily routine of prayer and bible study, I am a Catholic christian mix and I am not perfect and do sin, but that is my first above all that I go by, I… read more
Any Ideas On Which Surgery I Should Consider? My Doctor Suggested More RNS Or VNS. I'm Also Exploring Using CBD For My Epilepsy. Any Advice?
I've had 2 right temporal lobe lobectomies removing 13% of the 18% damaged brain of that area. Having that done has decreased seizure count approximately 90% stopped losing bowel movements, having… read more
For Those Of You Who Have Been Going To A Seizure Specialist What Has The Experience Been Like?
So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.
The epilepsy specialist I currently with has been wonderful with patient care as he is very thorough in wanting everything reviewed. We have always kept an open communication business relationship… read more
Question…what Is The Magnet Used For ??
Why Is It When My VNS Dies Or Comes Close To It More Seizure Types Surface. I Usually Only Have Focal Impaired Awareness Seizures And Auras.
The VNS is for reducing your seizures down . When the VNS battery dies many of those seizures the VNS controlled , will start coming back.
You need to talk to your Neurologist and let him/her know… read more
Out Of The Two Devices The RNS And VNS With One Is More Reliable When It Comes To Controlling Seizures? I Want To Have The Procedure Done?
Marla I think I’m leaning more towards the rns. I just don’t know with me having a vp shunt for my hydrocephalus condition if I can consider it or not. I’m so tired of symptoms from meds that don’t… read more
Is It True That People Can Trigger Their Seizures With The Vagus Nerve .. I Was Told By Sons Old Neuro That He Was Causing His Own Seizures
Do you believe that to be true and is it factual and possible? I mean why would anyone purposefully and intentionally want to do that.. I mean seizures are not fun and I’m sure if people could stop them for good they would… my son holds his breathe and his lips turn blue I even posted a video of what his type looks like on my page …
@A MyEpilepsyTeam Member ya well the doc was also dyslexic so I’m guessing she had no clue what she was talking about and still shocked how she even became a registered nurse who reads with difficulty… read more
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