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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers

Which Epilepsy Symptom Surprised You The Most?

By A MyEpilepsyTeam Member 168 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 146 answers

How Do Beverages With Caffeine Affect Your Epilepsy?

By A MyEpilepsyTeam Member 275 answers
12524 questions

Anyone With Nocturnal Seizures?

A MyEpilepsyTeam Member asked a question 💭
Jamaica, IA
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
No, I don’t have them anymore. At least, I can say I haven’t had them in several years. Ugh! I’m so sorry yours have returned. While I can’t suggest anything, I can at… read more

October 15

I Was Wondering If Anyone Can Describe Exactly What Happens When They Have A Focal Aware Seizure.

A MyEpilepsyTeam Member asked a question 💭
Southampton, UK

I had a cluster of focal seizures yesterday afternoon. Well what I think are focal seizures. It's always my left arm and left leg that jerk, I feel like I'm in a dream like state almost. I'm aware but have this weird jerking in my left arm and left leg. I just feel bizarre when it's happening. I just take it easy after as I feel a bit tired and odd. I'm still getting my head around seizures as I kept them secret for so long as I just thought I was weird.

A MyEpilepsyTeam Member

Lydia6, I recommend you read the reference article about Cluster Seizures , because it describes symptoms of focal partial aware seizures pretty well. Good luck and hang in there! K

October 21
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Does Anyone Have Any Experiences Of Males With Fertility Issues Owing To Taking Epilim? Is This Reversible?

A MyEpilepsyTeam Member asked a question 💭
Coventry England
A MyEpilepsyTeam Member

I agree with you and your post and the epilepsy team post too, hang in there and try and stay pos

October 13

Been Told That I’m Not Having Seizures. I Have Been Told It’s All Psychological. So I’m Lying And It’s All In My Head? Why Am I On Meds?

A MyEpilepsyTeam Member asked a question 💭

Why am I not allowed to drive, operate machinery, swim or ride a bike?. Is that all in my head, or is someone covering their ass because they know hey could be wrong?

A MyEpilepsyTeam Member

Some seizures are not picked up by the surface EEG. Ask them about Interictal Epileptiform Discharges on your EEG.

4 days ago

I Suffered 2 Nocturnal Tonic/clonic Seizures. Put On 500mg Keppra 2x Daily. What Is Percentage Will Have Another Episode?

A MyEpilepsyTeam Member asked a question 💭
Kansas City, MO

Since starting keppra month ago no further episodes and no side effects. I am 69 yrs old male in excellent physical shape and eat healthy. Am a reformed alcoholic for 8 yrs. I do not have a history of seizure disorder. What are the chances of remaining seizure free?

A MyEpilepsyTeam Member

Now K is working well so any future seizures will not be as intense if any occur. Ease mind a little knowing this. Great already to be sizure free too.

October 14

Does Anyone, Like Me , Think That A Regular Sleep Schedule Helps Prevent A Seizure?

A MyEpilepsyTeam Member asked a question 💭
Racine, WI
A MyEpilepsyTeam Member

Hang in there and try and stay pos

October 13

I Had Left Hippocampus And Amygdala Surgery 5 Years Ago. Surgery Was Successful But Tend To Have Random Twitching Of Head And Shoulder Area.

A MyEpilepsyTeam Member asked a question 💭
Oak Ridge, TN

Also have issues with loud sounds/noises and flashing lights etc….anyone have a similar experience?

A MyEpilepsyTeam Member

I had the same surgery but the side effects aren't like yours. The only side-effects I've noticed are being emotional about everything and jumpy when I hear things close to me like a dog barking or a… read more

October 13
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Do You Think Being On You Period Can Trigger Your Seizures

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I feel like they can because when I'm on my week i would sometimes have 2 or 3 seizures during that week even though i took my medicine and haven't been having seizures for weeks.This is mainly a question for the girls but anyone can answer

A MyEpilepsyTeam Member

So did I, until I stopped having them.

October 16

Are You Guys Scared To Drive

A MyEpilepsyTeam Member asked a question 💭
TEXAS, TX

I'm scared to drive because the sunlight and flashes trigger my seizures sometimes and If i got in a car crash i would feel Like it was my fault because I got on the road knowing that I had seizures.

A MyEpilepsyTeam Member

Yes I've been wondering because before the vns an of course vimpat and keppra i was seeing them all the time I've been doing well but I've been dealing with a lot of stress and feel like some of my… read more

October 15
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Has Anyone Gone Through The Stereo Eeg Operation? What Is It Like? What Is The Full Recovery Time? Thanks

A MyEpilepsyTeam Member asked a question 💭
Richmond, IL
A MyEpilepsyTeam Member

That sucks. One of the goals I was hoping for is to reduce the drugs. The side effects suck

October 16
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